tag:blogger.com,1999:blog-26068584783377128222024-03-13T20:57:55.464-07:00Help Holli HealHolli Deree Hawthornepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.comBlogger128125tag:blogger.com,1999:blog-2606858478337712822.post-23813565573904932002012-12-25T12:54:00.000-08:002012-12-25T12:54:11.844-08:00Christmas Day 2012
Needed to update you on Holli since she was in the hospital for in-patient rehab in August. Holli ended up getting a new J tube in her stomach because at that time she was not eating well. While in the hospital we changed her medications around and she now has a good appetite most days. She spent a month in out-patient rehab in October but is not getting rehab at the present time due to "running out of days" with Medicare for the year. They would schedule her two times a week but for 3 hours which she did not tolerate for that length of time. She would start off doing well but then get tired and agitated. Hopefully after the first of the year can get rehab again here at home. It worked better when PT, OT and speech would come on different days for only an hour each. We will see what happens next. This summer I was also able to purchase a used wheelchair van for Holli. It has been a blessing being able to take Holli to her appointments without having to depend on someone else. Holli is now feeding herself with her left hand. This is a small but "big" step for her. I do not have to give her any more continuous feedings at night. I supplement her feedings with bolus feedings if needed if she does not eat adequately. I usually give her one feeding at night to make sure she gets enough calories and vitamins for the day. I have found out that she loves chocolate milk. We bought her non-breakable, non-leak "sippie cups" which has worked out well. Holli got a notebook tablet from Mike Waggoner, a good friend, and his Sunday school class for Christmas. This way she can play games and other things to stimulate her brain. She and Heather have been playing "bowling" on Heather's phone lately and doing a good job bowling with her left hand. I need to find a bowling app for her so we can play. I pray that in 2013 that Holli will continue to improve. Wishing you a Merry Christmas and Happy New Year. Thank you for your continuing love, prayers and support.
Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com1tag:blogger.com,1999:blog-2606858478337712822.post-60767692538784265762012-08-22T14:43:00.000-07:002012-08-22T14:43:40.189-07:00Holli In-patient RehabHolli was admitted to the in-patient rehab at Baptist Hospital on this past Monday for at least one week and hopefully for two. Yesterday, after only sleeping 2 hours, was her first day going to physical therapy twice, occupational therapy twice and then having a swallow test done. She did very well yesterday ,really working hard to do what the therapist asked of her. She was helping with her bath, trying to brush her hair and teeth in OT. In PT they had her sitting on the side of the bed and then the mat in the gym doing some reaching, stretching task. She was really tired after her last session of PT. Then the wound nurses came to put silver nitrate around her feeding tube site. I am sure it did not feel good to have that done to her. They put a dressing on and said that it needed to stay on to keep it dry and free of infection. Holli immediately started ripping the dressing off and continued to do so with every one I replaced. She was very agitated by that time and all of a sudden grabbed her feeding tube and ripped it out of her stomach!! We have attempted to give her crushed up medications in her food but the trouble is that she does not have an appetite. We have succeeded getting the very necessary meds down her but she is not drinking any liquids. They started IV fluids on her this afternoon and she is scheduled to have her feeding tube inserted tomorrow. Holli's day, today, started off with her being in a very bad and uncooperative mood. It has finally improved this afternoon. I hope she will be in better spirits tomorrow so she can get some benefit from her therapy. I also post updates on Caring Bridge. You can keep up with her progress on caringbridge.org/visit/hollihawthorne . I feel very sure that if we can get Holli's mood improved that she will do well with her intense therapy session. Please keep her in your thoughts and prayers. Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com5tag:blogger.com,1999:blog-2606858478337712822.post-60085194012037021622012-07-26T08:55:00.001-07:002012-07-26T08:55:51.311-07:00Up DateSorry it has taken me so long to post on the blog. After Holli was evaluated for Shephard's Center it was decided that she needed some things evaluated before she does in-patient therapy. Back in March she was admitted to the hospital for 3 days to have a Baclofen trial. Each day she was given an injection into her spinal column of baclofen to see how her body responded. It was increased each day for 3 days. It was decided that she could benefit from having a baclofen pump implant to get the continuous infusion. That was done several weeks later. We can tell that her muscles are more relaxed and not as much muscle spasm and tone. We recently purchased a used wheelchair converted van so now Holli and I can go to her appointments without having to depend on other transportation. She does not do well out in public and gets agitated easily. Now that we don't have to wait at least an hour to get picked back up from her appointments, makes it so much better on both of us. It is hard having to depend on other people getting you to your appointments on time. It has been a very hot summer so we are not able to take Holli outside during the day very much unless we have to go somewhere. We are just trying to stay cool. We have finally been able to get occupational therapy coming to see Holli along with her physical therapy and speech therapy. To say the least, she stays busy during the week with everyone coming and going. She loves her male therapist and is always happy to see them. She is such a flirt!! Out biggest problem right now is Holli has no appetite and getting her to eat anything has been a challenge. She will cover her mouth with her hand and refuse to even try to eat. We cut back on her nightly tube feeding trying to get her to eat during the day. We will see her doctor in a couple of weeks and at that time discuss her getting in-patient therapy soon. Please keep her in your prayers as we face hopefully the next step in her recovery. I will try to do better about updating the blog.
Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-81876308089234940032012-02-24T11:13:00.002-08:002012-02-24T11:34:38.416-08:00Three Year AnniversaryIt was three years ago today that I got the chilling phone call that changed Holli and my lives. It is hard to think back and remember our journey. All the obstacles that she and I have both over come and also for my grieving my husband's death. In this process we have had many blessings bestowed upon us. I will never forget all the friends that I have meet and all the acts of kindness that was shown to us especially while I was away from home the first 6 months after Holli's accident. Holli has come so far....I thank the Lord for being with us every step of the way and for all His blessings. I am so blessed to have Holli home for the past year. We are both so much happier being home. She is still slowly progressing. It is thrilling seeing her standing with help and getting her body stronger. She talks and laughs more and more but of course she still gets agitated and will cuss you out in a heart beat!! Her favorite pass time are movies such as Muppets, Shriek, Scooby-doo or anything animated or musical. She loves to sing and will sing along with the movies or the music channel. I am once again trying to get her admitted to Shepherd's Center in Atlanta. She still needs aggressive therapy to help her continue to progress. Please keep us in your prayers about this next step in Holli's life. Thanks to everyone that has helped , prayed and supported us these past three years. I will never forget your acts of kindness.<br />Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-83550647584451479002012-01-30T17:32:00.000-08:002012-01-30T17:55:57.252-08:00Home 1 year laterIt is hard to believe that it has been a year since Holli has been home. She and I are both so much happier being here. She is now standing up in physical therapy with assistance. Each time we stand her she tolerates it for a longer period of time. It will take awhile to build up her strength. She appears to be getting stronger, especially her left (unaffected) side but I am seeing some improvement on her right side. We finally after about 3 tries found a good foot splint that she wears daily for about 8 hours that is helping her foot drop. She is continuing to get botox every 3 months in her right arm and leg. We now have to put her arm splint on when she goes to sleep or she will take it off!! This way we can get some benefit from the arm splint. Holli is talking more and more but still confused most of the time and continues to have the short term memory loss. She continues to get agitated easily and will cuss you out in a heart beat. Her appetite varies from day to day. Some days she will eat and drink really well but then other days she will not eat anything. We still have her on nightly tube feeding to be sure she get adequate nutrition. She loves watching movies and believe it or not football. This is funny to me because before her accident she could care less about sports. When Heather has asked her during the play offs who would win , she has picked the winners every time!! It will be interesting to see if she picks the winner of the Super Bowl on Sunday. Her 34th birthday is coming up on Valentine's Day. She has come along way these past three years but she still has a long way to go.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com1tag:blogger.com,1999:blog-2606858478337712822.post-34087160989059246342011-06-16T11:31:00.000-07:002011-06-16T11:55:32.372-07:00Holli 6 months at home!It is hard to believe that I have had Holli home for 6 months. It is so wonderful to have both of my girls back home with me. I am still grieving over my husband's death but having Holli here to concentrate on has really helped. Holli and I am both so much happier with her being here. Holli has nursing assistants come here twice a day to help with her care which gives me a break and enables me to go to the grocery, run errands or make appointments for myself. Holli is still getting botox injections every three months so we get to go on a "road trip" whenever she has an appointment. Even though she enjoys going in the transportation van to the doctor these trips tire her out. She gets a shower once a week, which she still does not like, and get up in her wheelchair for several hours 3-5 days a week, depending on when I have someone to help me get her back to bed. Everyday she wears her high top tennis shoes and right arm splint for 6 to 8 hours. She is being fitted for a splint for her right foot to help with her foot drop. Physical therapy comes twice a week and nurse once a week. It seems like we are always having company with everyone coming in and out. Today Holli was visited by her good friend, K T, from Oakland, Ca. It is always so great whenever Holli's friends come and see her. It makes her so happy to see her friends. I know Holli gets tired of just looking and being with me all the time!! I appreciate all the love and prayers that we are still receiving. We have come a long way on this journey but we still have a long way to go. I want to wish my 91 year old Dad Happy Farther's Day, love you Dad.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-70399047326251635252011-03-31T07:56:00.000-07:002011-03-31T08:39:24.106-07:00Franny's Visit with HolliHello friends, On my way back from the Gon KiRin roadtrip to Detroit I stopped in Nashville on my way to Austin to visit with Holli and Diane. I arrived late and Hollis was asleep so Diane and I had the chance to catch up. The last time I saw them was when Hollis was at St. Lukes Hospital in San Francisco before I moved to Mexico in July 2009. Wow times flies and Hollis has progressed tremendously!!! She suddenly woke up and was eager to see who was there. I walked down the stairs and she was smiling. She thanked me for coming to visit her all the way from California. She was amused by my 100-pound rottweiler and wanted to see her up close. Osa Perez jumped on her bed and licked her face multiple times as Hollis giggled. She laughed and said "you've got a big pooch but she's a big baby!" She asked me if I was going to spend the night. I said "Yes, we are going to have a slumber party!" She told me to get on her bed thus I did. I told her that everyone misses her and loves her and she said "It's not the same without me is it?" I agreed. Later that night I was sleeping in her room that she grew up in and I noticed the glow in the dark message that she wrote on the ceiling as a child. It said "The stars don't shine when your eyes are closed!" It really touched me because I could hear her saying it as I read it. The next morning we watched TV together and I played with her beautiful dark brown long hair. I gave her my silver guatemalan jade ring that I made in Chiapas and she thanked me. She liked looking at the bling. She was talking a lot and she listened and absorbed very word I said sometimes repeating my sentences taking it all in. She even had a conversation with my pops on the phone. She made his day and he told her that she's a tough cookie. Harry called and sung her a song. She recognized the song and said it was beautiful. She enjoys watching Disney movies and listening to her mom read to her. She still has her sass and doesn't always like it when the nurses put her in the shower. I encourage all of you to stop by and visit her whenever you are near Nashville. She loves the company of her friends . Diane has renovated the entire downstairs for Hollis including the shower room. She receives Botox every few months to help with the flexibility of her muscles. Holly told me that she loves her mom and that she's her main inspiration. Diane is very happy to have Hollis around. It's been really rough since Doug passed. Heather and her two girls will be moving in soon. I am pleased to know that the Hawthornes are together once again. Love and kisses, Frannypaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com1tag:blogger.com,1999:blog-2606858478337712822.post-83925437863263066762011-02-24T13:45:00.000-08:002011-02-24T14:13:12.829-08:002 Year AnniversaryI will never forget that phone call in the middle of the night two years ago. The one that turned my world upside down as well as Holli's . It is hard to believe that it has been that long and all we have gone through, the heartaches, the ups and downs of our journey. Thank you Lord for being with us every step of our journey and for giving me the strength to get through each day. Through this journey I lost the love of my life two months ago. It is hard some days but having Holli home gives me a purpose and a joy and makes the heart ache a little less. I am so thankful for how far Holli has come and look forward to her continuing to improve. We are so blessed by the love and support of our family and friends. Just the encouragements and love that was given helped me get through the rough days. I pray a year from now that we will still be rejoicing in Holli's continued progress. I just want to say thank you for your continued love and support.<br />Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com1tag:blogger.com,1999:blog-2606858478337712822.post-77182880898902006742011-02-04T16:00:00.000-08:002011-02-04T16:16:16.567-08:00Holli's HomeFor those who do not follow Holli on her caring bridge site, I was finally able to bring Holli home on January 15th. We totally remodeled the downstairs to make it Holli's living area. For the most part Holli is very content and happy being home. She still forgets that she is at home and asks when we can go home. We have been home 3 weeks tomorrow. Holli was greeted that day with family and friends to welcome her home. It has been a comfort for me to have her here so I don't get lonely. It has been hard since Doug died and I miss him so much but having to concentrate on Holli has been a blessing and is helping me to heal. I pray that this coming year will be filled with happiness. We will be celebrating Holli's 33rd birthday on Valentine's Day. We will definitely have ice cream and cake.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-65340236570702454422010-08-08T14:28:00.000-07:002010-08-08T14:34:34.689-07:00Back in the HospitalHolli was admitted back to the hospital this past weekend. For details please log on to caringbridge.org/visit/hollihawthorne where I have posted the latest on Holli's condition. Thanks. Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-1791247103081612292010-07-05T19:44:00.000-07:002010-07-05T19:53:38.970-07:00Discharged from HospitalToday Holli was discharged from the hospital back to Madison Health care. She has a PIC line in that will stay for the next two weeks to receive IV antibiotics. Holli seemed glad to be back in her room but was very tired and just wanted to sleep so I left her alittle early tonight. I am needing some rest myself and hope to be able to recuperate in the next couple of days. I had forgotten what little sleep you get sleeping at the hospital. Thanks to everyone for your thoughts and prayers.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-33028252265098626672010-07-02T16:49:00.000-07:002010-07-02T17:10:07.797-07:00FridayToday makes a week that Holli has been in the hospital. She had a rough night and day with pain and nausea. She is finally resting comfortable this evening and was able to eat some supper without any problems. Holli had a PIC line put in her left arm this afternoon so she can continue to receive IV antibiotics for several weeks after we leave the hospital. She continues to run a low grade fever that they have been unable to identify the source. When her blood cultures were drawn she had already received a couple of antibiotics which can mask anything that might be growing. The doctor talked like we will be going back to Madison Health care this weekend. I should know more tomorrow.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-35562559250437844312010-07-01T11:24:00.000-07:002010-07-01T11:41:42.651-07:00Feeling BetterHolli is doing better. Yesterday she was very talkative and laughing but today is very quiet and sleepy. She is still running a low grade fever even though she is getting 3 different antibiotics. An infection control physician is now seeing her trying to find the source. Her blood count is slowly improving but is still not in the normal range but at least is holding. Heather stayed with Holli last night so I could get some sleep. I never slept the night before because Holli had a restless night. I am back now and will be with her for the rest of her hospital stay. We don't know how long that will be before she is discharged. I am thankful that she is improving. While we are here she is being seen by speech, physical and occupational therapy which is wonderful. They sat her on the side of the bed yesterday and is working with her left hand coordination to help her learn how to brush her own teeth and wash her face. Today when they came in she was too sleepy to be able to do much but hopefully tomorrow she will be more awake.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-4261331400121846182010-06-28T16:11:00.000-07:002010-06-28T16:24:22.748-07:00Hospital Day 3Holli's color has been better today with her blood level improving. We waited all day for her to be taken to xray for her special procedure. We finally went down at 4:30. They called up to the room to say that she did very well with conscious sedation. They have inserted a drainage tube that is hooked up to a drainage bag located near her left groin. The drainage looks like blood instead of infection but cultures will be sent to the lab. Heather will be staying tonight and tomorrow day with Holli so I can go home and get a little rest and get ready to come back tomorrow evening.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-82461612212088789332010-06-27T09:12:00.000-07:002010-06-27T09:48:00.890-07:00Day 2 HospitalThe doctor feels pretty sure that Holli has had a retro peritoneal bleed in the psoas muscle. Her hemoglobin and hematocrit dropped even more this morning so she is now receiving 2 units of blood and will also get some more plasma today also. Because her blood is still too thin she will go tomorrow to have the aspiration and drain inserted in xray. She ran a fever all night and they will continue her broad spectrum antibiotics. I can tell she is very weak because she is very quiet and sleeping alot. The nurses were in and out the room all last night giving plasma, starting another IV, drawing blood and doing vital signs. So it was another night of very little sleep. They did at least bring in a cot for me to sleep on. It brought back memories of St. Lukes Hospital in San Francisco of me sleeping on the cot next to Holli for almost 6 months. I will continue to keep you updated during our hospital stay.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-36720632422137911852010-06-26T13:07:00.000-07:002010-06-26T13:45:31.966-07:00Holli in hospitalYesterday Holli started complaining about her left leg hurting whenever she would try to move it. Her left leg is her good side that usually she has no trouble in moving. Last evening we decided she needed to come to the emergency room since she has a history of DVT ( blood clots). When we got here after several xrays and blood work drawn we discovered that she had a urinary tract infection and that her blood level was too thin and running a fever. She was still having alot of pain in her left hip so the ER doctor had her admitted to the hospital. We got to our room about midnight and then at 2:30 AM she was taken to xray for a CT Scan. The CT scan showed fluid in her psoas muscle. The doctor said it could be either be due to a hematoma or abscess. Since her blood is too thin they are giving her frozen plasma today to thicken her blood so she can have that fluid drained tomorrow in xray. She is being given 3 different antibiotics and has a foley catheter in because her bladder was distended. We will be here at least several days depending on what they find from the aspiration of the fluid. Neither one of us got much sleep last night. I am having to sleep in a recliner by her bedside. The good thing is that speech, physical and occupational therapy are all seeing her during her stay here. I will keep you updated on her status. Please keep her in your prayers.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-2292648271923803522010-06-13T14:42:00.000-07:002010-06-13T15:06:31.468-07:00UpdateSorry it has been awhile since my last update. Holli had a swallowing test several weeks ago that she passed. She is now starting to get meal trays that we feed her. She is on soft and pureed foods with thicken liquids. Usually she take but only a few small bites of her meals but her therapist said that she is not concerned at the moment about how much she is eating but getting her use to the process. We are continuing to work with splinting her right arm. It is getting a little easier to do range of motion on her arm and she will relax it at times to about a 90 degree angle.<br />Last weekend I went to my parent's home and my childhood home town to celebrate my Dad's 90th birthday. We had a great family party. Holli called me while I was at the party and sang Happy Birthday to her Pappy!! It thrilled him as well as all of us there. When I got back this past Wednesday Holli had made me a water color sign ( with a little help) using her left hand that said I Love You. It was my welcome back present. I now have it posted on my fridge at home.<br />I still have not heard back from my appeal to her insurance company concerning her going to Shepard's Center in Atlanta. Hopefully I will hear something this month.<br />Holli's friends in San Fran are wanting to use the money they have raised recently for Holli to get massages. I am in the process of lining up someone to come out here to give regular massages. Her therapist here thinks this is also a good idea and should help the tone in Holli's arm and neck. She knows someone that I will be talking to real soon.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-47872318906342508062010-05-08T11:53:00.000-07:002010-05-08T12:29:16.957-07:00Mothers DayThis Mothers Day weekend I stop to thank my Lord for all my blessings. Both of my daughters are very precious to me and I am so thankful for all the joy that they bring into my life. It is so wonderful that Holli has come so far and this Mothers Day is able to talk and laugh with me as a year ago I was just blessed to have her alive. Heather is such a wonderful daughter and has been there for me in so many ways . She has become my best friend and rock over the years. I don't know what I would have done on so many days when my strength would falter and I needed her strength. And to my Mom, I thank you for your love and showing me through your life about our Saviours love and how you are always there for our family no matter what the situation. You taught me to be strong and to keep the faith. I love you, Mom.<br />Therapy has started the serial casting of Holli's right arm. They have it at a 90 degree angle and Monday will take it off and stretch her arm more and recast it. I pray that with the botox and casting that her arm will improve. She has tolerated the casting well so far. She still has her good days and then her not so good days and gets very emotional at times. I hope everyone has a wonderful weekend.<br />Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com2tag:blogger.com,1999:blog-2606858478337712822.post-13659041838541330342010-04-29T14:12:00.000-07:002010-04-29T14:28:30.782-07:00First Botox TreatmentToday Holli went for her first botox treatment to her neck and right arm. I pray that these treatments will make a big difference. She will get her next injections in 3 months. Holli tolerated them very well. Therapy is to restart working with her arm again next week. <br />Holli has been in a good mood for the past week. She is laughing more and seems calm. Some days she gets fixated on certain subjects and can get really upset about her "disability". We are all stressing that she does not have a disability but a brain injury with some physical challenges. She will quickly forget what we tell her and we just have to keep reminding her. Then on other days she will say "funny" things and just laugh at herself and sings songs along with her Ipod or the Arts station on tv. She enjoys being read to and playing Uno card game. She also loves going every Monday to get a manicure. The weather is starting to warm back up so we will be able to spend more time outside before it gets too hot and humid.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-26584674445021257042010-04-12T09:23:00.000-07:002010-04-12T09:34:31.225-07:00Botox injectionsGood news Holli's botox injections have finally been approved!! She should be getting an appointment soon for her first treatment. It has taken 5 weeks for this to happen. I am so thankful that we can now start again to get Holli's right arm straightened. She has so much tone in that extremity that she desperately needs botox for us to be able to accomplish this feat.<br />Holli had a good friend, KT, from San Francisco visiting her this past week. They watched "The Little Mermaid" which they love to sing the songs. We have been having some beautiful spring weather. Holli and I have been going outside and ejoying the sunshine and fresh air.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com0tag:blogger.com,1999:blog-2606858478337712822.post-57537344239623103302010-03-27T09:18:00.000-07:002010-03-27T09:54:51.469-07:00Eliza's VisitThis week Holli has been back to her old self of smiling and laughing. Her best friend from San Francisco, Eliza, was here to spend three days with Holli. Holli was so excited about Eliza being here. Before Eliza arrived on Wednesday, Holli dictated a letter to Eliza telling her that she was glad she was here and that she loved her. Holli was parked in the dining room at the big window watching for us to arrive. Eliza entertained Holli for the next three days, reading to her, giving her "gifts" and letters from friends back in SF. When Holli's roommate was out of the room , we would put on the music and Eliza would dance with Holli in her wheelchair. Holli again was laughing and trying to make jokes. Holli's big punch line was that she has "spinal myalgia" whenever she couldn't remember what she wanted to say and then just die laughing!! We were able to take Holli outside yesterday and enjoy the sunshine. Thanks, Eliza, for being here for Holli.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com2tag:blogger.com,1999:blog-2606858478337712822.post-43940310388779256472010-03-08T12:34:00.000-08:002010-03-08T12:40:31.167-08:00Not Giving Up the Fight!I received a phone call this morning from Holli's insurance, Amerigroup, that the doctor denied her going to Shepherd Center. I have already appealed the denial but may not know anything up to 90 days. I am reaching out to resources for help to see if there is anyone we can contact that could help with our case. I need once again your prayers for Holli and for guidance as we continue to pursue this fight to get her into Shepherds Center. I appreciate every ones love and support. I will keep you posted.<br />Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com1tag:blogger.com,1999:blog-2606858478337712822.post-57137601728788093002010-03-07T16:26:00.000-08:002010-03-07T16:45:16.466-08:00Holli Starting to RememberFor the last several days Holli has been very sad and having very negative thoughts about her past. She has been remembering many childhood memories that have been upsetting to her. She repeatedly talks about remembering having bad feeling about people and people being mad at her and getting upset about "stupid things". She is talking constantly about all these thoughts and feelings. I keep reminding her that no one is upset with her and that she is truly loved. She gets so worked up at times that she gets a very rapid heart rate, sweaty and her skin is blotched. I know this is part of the healing process but it breaks my heart when she gets so sad and starts bawling or so anxious about her negative feeling. I pray that she will soon find peace and strength to get through this phase of her healing.<br />Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com2tag:blogger.com,1999:blog-2606858478337712822.post-13488067909362939692010-03-01T10:21:00.000-08:002010-03-01T10:34:13.051-08:00Shepherd UpdateGot a call this morning from my social worker that Shepherd Center has agreed to negotiate with Holli's insurance company. It will be a hard road to get them to agree to send Holli out of network to Atlanta. We still need your prayers.<br />Harrison is in town to visit Holli and his friend Brody. Harrison was so shocked to see how well Holli was talking last evening. He will be in town until Wednesday and plans to visit with Holli again today. She told me that her memory is fuzzy and it is frustrating not to be able to remember. I know with time that this will get better.paigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com3tag:blogger.com,1999:blog-2606858478337712822.post-56582096341393581522010-02-21T10:42:00.000-08:002010-02-21T11:08:32.127-08:00Shepards Center EvaluationTuesday Shepard's Center from Atlanta is sending a representative to evaluate Holli to see if she is a candidate for their facility. They are specialized in brain trauma patients and hopefully be able to help Holli progress with her rehab. Of course they have to get her insurance to agree with this move to Atlanta. I am praying that this door will be open to Holli so she can hopefully regain more use of her body. She is doing well with her talking and taking thickening liquids and yogurt. She has been having a very hard time the past several months with severe leg cramps and spasms that causes her to get very agitated at times and other times to cry. We have been trying different medications to try to control her discomfort but she still has been having several rough days lately. It breaks my heart to see her suffering and upset. Please keep Holli in your thoughts and prayers.<br /><br />Dianepaigerenohttp://www.blogger.com/profile/08078719325647718847noreply@blogger.com2